Living with Scleroderma

this is nothing but a curve ball

Just like everyone else

People who suffer from a chronic condition are just like everyone else.  We also have bills, family, work, responsibilities, stress, etc.  The only difference is that on top of all that…. we have our health to constantly think about and deal with.

We don’t expect to be treated special, but we would appreciate a little bit of patience and understanding. We all have different types of illnesses and are affected by them in different ways.

Please be a little bit more patient with us when we don’t get to spend time or keep up with friends and family. Our days are so unpredictable that it’s very difficult to plan things ahead of time. We just go and do things when we are physically able to.  But that doesn’t mean we don’t like being invited or thought of.

I’m so blessed by the people who checks up on me. The ones who constantly ask me how I’m doing and tells me that they are praying and thinking about me. Thank you.  It means a lot to me and my family.

We know that having these illnesses may seem selfish or unreasonable or inconsiderate to some.  I apologize.  But please understand that no words can express how our lives have been turned upside down and side to side since getting sick. It’s very tough to go on with a new symptom to deal with every single day.

Our daily actions are dependent on how barely slept the night before, how we were physically exhausted from having cough or pain attacks, how drained we are from going to the hospitals often for tests and visits, and how frustrated we get for never having enough time to do everything we needed to do.

Just like everyone else…
we also need people to be kind, loving and forgiving.

It’s a tough world out there, even for people who don’t have to deal with a chronic illness.  Let’s try to understand each other instead of finding things to nitpick from one another.  Let’s learn to pray for each other, instead of putting each other down.  Let’s be an encourager, instead of creating confusion in our relationships.

And remember…

….to always do everything in love.

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